Selected Web Resources
Internet links are provided in the following 5 general
categories:
- Background information and resources to document current
problems with the U.S. health care system
- Knowledge, skills, or access to resources related to
community advocacy
- Knowledge, skills, or access to resources related to
policy development or lobbying
- Opportunities for providers to join coalitions with
patients (and/or health care consumers)
- Reach large numbers of primary care providers
National
State linkages
The Society of Primary Care Policy
Fellows does not control the content of any of the Internet sites linked from this page,
nor does the Society verify that the information contained in these Internet sites is
accurate.
Background information and resources to document
current problems with the U.S. health care system
Disclaimer
The Challenge and Potential for Assuring Quality Health Care for the
21st Century - AHRQ
http://www.ahrq.gov/qual/21stcena.htm
This Department of Health and Human Services report, The
Challenge and Potential for Assuring Quality Health Care for the 21st Century. The
report notes the wide-ranging quality problems in the health care industry.
Primary Care: America's Health in a New Era (IOM Report)
http://www.nap.edu/catalog/5152.html?onpi_webextra3
Institute of Medicine's 1996 report describing the state of primary
care in the United States that calls for the development of a national public and private
consortium dedicated to increasing the role of primary care in the United States
Crossing the Quality Chasm: A New Health System for the 21st Century
http://www4.nas.edu/onpi/webextra.nsf/web/chasm?OpenDocument
http://www.nap.edu/books/0309072808/html/index.html
Institute of Medicine's 2001 report on need to overhaul the health
care system. Available in two different formats. The second URL above offers the complete
text on a screen-readable format
World Health Report 2000
http://www.who.int/health-services-delivery/index.html
World Health Organization report that ranks the Unites States health
care system 37th in the world and among the worst of the industrialized
nations. To get the report, you must click on the website, click on “WHO search
engine” and search for “World Health Report 2000” and click on “World
Health Report 2000 (pdf)”
The Plight of the Uninsured
http://www.kff.org/docs/sections/kcmu/uia2000.html
Kaiser Family Foundation website providing data and information
resources related to the problems of the un-insured and under-insured in the United States
Council on Graduate Medical Information
http://www.cogme.gov/rptmain.htm
Listing of COGME reports available in pdf format. Although focusing
on physician workforce issues, these reports describe some of the health care service
needs of the U.S. population, and some reports discuss interdisciplinary and
multidisciplinary issues in the health care workforce
Knowledge, skills, or access to resources related
to community advocacy
Disclaimer
National
Community Toolbox
http://ctb.lsi.ukans.edu/
This is the web site created and maintained by the University of
Kansas Work Group on Health Promotion and Community Development in Lawrence, KS, and
AHEC/Community Partners in Amherst, Massachusetts. Currently, the core of the Tool Box is
the “how-to-tools.” These how-to sections use simple, friendly language to
explain how to do the different tasks necessary for community health and development.
Additionally, you will find links to hundreds of other helpful web pages and listserves in
areas such as funding, health, education, and community issues.
Civic Practices Network
http://www.cpn.org/
Civic Practices Network (CPN) is a collaborative and
nonpartisan project bringing together a diverse array of organizations and perspectives
that share a commitment to bring practical methods for public problem solving into every
community and institutional setting in America. The site contains tools and guides for
civic participation and also lists a number of affiliates available at the state, local
and regional levels.
The Asset Based Community Development Institute
http://www.nwu.edu/IPR/abcd.html
The Asset-Based Community Development Institute (ABCD) is built upon
three decades of community development research by John Kretzmann and John L. McKnight.
The site provides information for ordering workbooks for community builders to identify,
nurture, and mobilize neighborhood assets.
A Guide to Ethnic Minority Neighborhood Outreach
http://www.cpn.org/tools/manuals/Health/minority.html
An on-line guide developed by American Health Decisions to
increasing ethnic minority participation in organized community activities
The Citizen's Guide
http://www.vcn.bc.ca/citizens-handbook/
A site hosted by the Vancouver CommunityNet. Contains an on-line
how-to guide to community organizing, links to other tools and library
Healthy Communities Program – National Civic League
http://www.ncl.org/
A primer on the Healthy Communities movement, skills linked to this
movement, and additional resources on community organizing and action
The Center for Community Change
http://www.communitychange.org/
The Center for Community Change is committed to reducing poverty and
rebuilding low income communities by helping people to develop the skills and resources
they need to improve their communities as well as change policies and institutions that
adversely affect their lives.
The Pew Partnership for Civic Change
http://www.pew-partnership.org/index.html
The Pew Partnership is a civic research organization whose mission
is to identify and document promising solutions crucial to strong communities. The web
site has resources designed to disseminate practical information about what works to
citizens and practitioners everywhere.
The Access Project
http://www.accessproject.org/
The Access Project of the Center for Community Health Research and
Action works to strengthen community action, promote social change, and improve health,
especially for those who are most vulnerable. By supporting local initiatives and
community leaders, The Access Project is dedicated to strengthening the voice of
underserved communities in the public and private policy discussions that directly affect
them.
State
Civic Practices Network
http://www.cpn.org/
Listed above as a national resource, this site also provides links
to a number of affiliates available at the state, local and regional levels
Knowledge, skills, or access to resources related
to policy development or lobbying
Disclaimer
National
Congress at your fingertips
http://www.congress.org/
Information by zip code on congress and the media. Guide to issues
before Congress
The Robert Graham Center: Policy Studies in Family Practice and
Primary Care
http://www.aafppolicy.org/
The purpose of the Graham Center is to bring a family practice and
primary care perspective to health policy deliberations in Washington. The site contains
numerous policy statements, articles, and presentations of issues related to primary care
policy.
The National Association of Community Health Centers (NACHC)
http://capwiz.com/nachc/index_frame.html
NACHC's policy guide provides basics of how Capitol Hill works, how
to contact your representative, and how to be effective in communicating with legislators
and staff
American Public Health Association (APHA)
http://www.apha.org/legislative/
Advocacy and lobbying tips, including basics of communicating with
legislators and links to sites to identify whom to contact in Washington on particular
policy.
American Medical Student Association Policy webpage
http://www.amsa.org/hp/hpindex.cfm
A site with multiple links to health care policy briefs, resources,
and advocacy tools
Coalition for Healthier Cities and Communities
http://www.healthycommunities.org/
The home page of the Coalition for Healthier Cities and Communities
and the International Healthy Cities Foundation. The Health Policy Coach, which can be
reached through the web page on the US Healthy Cities page, has information about
coalition building and policy briefs on many public health and health care topics.
Medscout – Health Care Policy Resources
http://www.medscout.com/health_policy/
Many web-based links to organizations involved in health policy,
provided by Medscout, a company that provides physician-edited medical information links.
Alliance for Health Reform
http://www.allhealth.org/
The Alliance for Health Reform provides information in a number of
formats to journalists, elected officials and their staffs, and other shapers of public
opinion. A non-partisan, non-profit group, the Alliance advocates no particular blueprint
for changing American health care and pursues the tandem goals of extending health
coverage to all Americans and containing health care costs. The site contains links to a
number of sourcebooks intended to educate on health policy issues
State
Kaiser Family Foundation
http://www.kaisernetwork.org/health_cast/hcast_index.cfm?display=detail&hc=100
A site provided by the Henry J. Kaiser Family Foundation, this site
provides information on issues relevant to health policy at the state level and links to
other organizations and resources for state health policy
State Health Facts
http://www.statehealthfacts.kff.org/
A site provided by the Henry J. Kaiser Family Foundation to provide
state-by-state information on health and health care
State Public Health Associations
http://www.apha.org/state_local/afflinks.htm
APHA's linkages to state public health associations
Guide to state governments and government services
http://www.state.XX.us/
(N.B. Not a real web site – you must enter your state
abbreviation to get access to your state's site)
Although each state's site is different, this web site should
provide easy access to all government agencies as well as information about the structure
of health care services and oversight in your state.
Specific States
Massachusetts
http://www.state.ma.us/legis/citytown.htm
A list of legislators by city and town in Massachusetts
Opportunities for providers to join coalitions with
patients (and/or health care consumers)
Disclaimer
National
Families USA
http://www.familiesusa.org/
Families USA is a national nonprofit, non-partisan organization
dedicated to the achievement of high-quality, affordable health and long-term care for all
Americans. Families USA manages a grassroots advocates' network of organizations and
individuals working for the consumer perspective in the national and state health policy
debates.
Community Catalyst
http://www.communitycat.org/
Community Catalyst is a national advocacy organization that helps
consumers and communities participate in decisions that shape their health care systems.
ACORN
http://www.acorn.org/
ACORN, the Association of Community Organizations for Reform Now, is
the nation's largest community organization of low- and moderate-income families, with
over 100,000 member families organized into 500 neighborhood chapters in 40 cities across
the country
American Health Decisions
http://www.ahd.org/
American Health Decisions (AHD) is a national network of grassroots
citizens groups that aims to empower citizens in the public process of health policy. Its
16 state member groups engage in a variety of activities to facilitate community dialogue
on health values, inform and collaborate with policy makers and health providers, and
activate a sense of community responsibility around specific issues.
State
The following website provide linkages to stories and state-specific
resources for grassroots health care policy efforts
Alabama
The Alabama Cooperative Extension System
http://www.aces.edu/
California
California Health Decisions
http://www.cahd.org/
Georgia
Georgia Health Decisions
http://www.ahd.org/ahd/states/GA/GA.html
Oregon
Oregon Health Decisions
http://oregonhealthdecisions.org/
Reach large numbers of primary care providers
Disclaimer
National (alphabetical listing)
American Academy of Family Physicians (AAFP)
http://www.aafp.org/
The American Academy of Family Physicians is the national association of family
doctors. It is one of the largest national medical organizations, with more than 93,100
members
American Academy of Nurse Practitioners (AANP)
http://www.aanp.org/
A full service organization for nurse practitioners of all specialties that represents
over 60,000 nurse practitioners
American Academy of Pediatrics (AAP)
http://www.aap.org/
The American Academy of Pediatrics exists to prepare its members with the tools,
skills, and knowledge to be the best qualified health professionals 1) to advocate for
infants, children, adolescents, and young adults and provide for their care; 2) to
collaborate with others to assure child health; and 3) to ensure that decision-making
affecting the health and well-being of children and their families is based upon the needs
of those children and families. The American Academy of Pediatrics also exists to support
members professional satisfaction and personal growth.
American Academy of Physician Assistants (AAPA)
http://www.aapa.org/
The American Academy of Physician Assistants (AAPA) is the only national organization
that represents physician assistants (PAs) in all specialties and all employment settings.
Its membership also includes physician assistant students and supporters of the
profession.
American Association of Colleges of Nursing (AACN)
http://www.aacn.nche.edu/
American Association of Colleges of Nursing is the national voice for university and
four-year-college education programs in nursing. AACN today represents 550 schools of
nursing at public and private universities and senior colleges nationwide.
The American Association of Colleges of Osteopathic Medicine (AACOM)
http://www.aacom.org/
The American Association of Colleges of Osteopathic Medicine (AACOM) exists to serve
the administration, faculty, staff, and students of the 19 member osteopathic medical
schools through its centralized Application Service (AACOMAS), Government Relations,
Finance, Communications & Member Services, and Research & Information Services
departments.
American Association of Colleges of Pharmacy (AACP)
http://www.aacp.org/
Founded in 1900, the American Association of Colleges of Pharmacy (AACP) is the
national organization representing the interests of pharmaceutical education and
educators. Comprising all 82 U.S. pharmacy colleges and schools including more than 4,000
faculty, 36,000 students enrolled in professional programs, and 3,600 individuals pursuing
graduate study, AACP is committed to excellence in pharmaceutical education.
American Association of Public Health Dentistry (AAPHD)
http://www.aaphd.org/
Founded in 1937, the American Association of Public Health Dentistry (AAPHD) provides a
focus for meeting the challenge to improve oral health. AAPHD membership is open to all
individuals concerned with improving the oral health of the public
American College of Nurse-Midwives (ACNM)
http://www.acnm.org/
The American College of Nurse-Midwives (ACNM) is the oldest women's health care
organization in the U.S. ACNM provides research, accredits midwifery education programs,
administers and promotes continuing education programs, establishes clinical practice
standards, creates liaisons with state and federal agencies and members of Congress
American College of Nurse Practitioners (ACNP)
http://www.nurse.org/acnp/
Founded in 1993, the American College of Nurse Practitioners (ACNP) is a national
non-profit membership organization headquartered in Washington, DC. The ACNP is focused on
advocacy and keeping NPs current on legislative, regulatory and clinical practice issues
that effect NPs in the rapidly changing health care arena.
American College of Obstetricians and Gynecologists (ACOG)
http://www.acog.org/
The American College of Obstetricians and Gynecologists (ACOG) has over 41,000 members.
Now based in Washington, DC, it is a private, voluntary, nonprofit membership
organization.
American College of Physicians-American Society of Internal Medicine
(ACP-ASIM)
www.acponline.org
The American College of Physicians-American Society of Internal Medicine (ACP-ASIM) is
the nation's largest medical specialty society. Its mission is to enhance the quality and
effectiveness of health care by fostering excellence and professionalism in the practice
of medicine. ACP-ASIM membership includes over 90,000 physicians in general internal
medicine and related subspecialties
American College of Preventive Medicine (ACPM)
http://www.acpm.org/
The American College of Preventive Medicine (ACPM) is the national professional society
for physicians committed to disease prevention and health promotion. ACPM's 2,000 members
are engaged in preventive medicine practice, teaching and research.
American Dental Association
http://www.ada.org/
The ADA is the professional association of dentists dedicated to serving both the
public and the profession of dentistry.
American Nurses Association (ANA)
http://www.ana.org/
The American Nurses Association is a full-service professional organization
representing the nation's 2.6 million Registered Nurses through its 54 constituent state
associations and 13 organizational affiliate members.
American Medical Student Association (AMSA)
http://www.amsa.org/
The American Medical Student Association (AMSA) is the oldest and largest independent
association of physicians-in-training in the United States, with a membership of over
30,000 medical students, pre-medical students, interns and residents from across the
country. Founded in 1950 to provide medical students a chance to participate in organized
medicine, AMSA has refocused its energies on the problems of the medically underserved,
inequities in our health-care system and related issues in medical education.
American Optometric Association (AOA)
http://www.aoanet.org/
The American Optometric Association (AOA), founded in 1898, represents more than 32,000
doctors of optometry, students of optometry and paraoptometric assistants and technicians
in more than 6,600 communities across the country and in foreign countries.
American Psychological Association (APA)
http://www.apa.org/
The American Psychological Association (APA) is a scientific and professional
organization that represents psychology in the United States. It has more than 155,000
members.
American Public Health Association (APHA)
http://www.apha.org/
Web-site for public health association with over 50,000 members. Also contains links to
state public health associations and information about legislation and policy at the
national level
Association of Clinicians for the Underserved
http://www.clinicians.org/
ACU is a nonprofit, interdisciplinary organization whose mission is to improve the
health of underserved populations by enhancing the development and support of the health
care clinicians serving these populations. Members include health care professionals from
18 disciplines, health care organizations, hospitals and agencies, and universities.
Association of Schools of Allied Health Professions (ASAHP)
http://www.asahp.org/
The Association of Schools of Allied Health Professions (ASAHP) is a not-for-profit
national professional association for administrators, educators and other who were
concerned with critical issues affecting allied health education. ASAHP's membership
consists of 108 academic institutions, four professional associations, and approximately
300 individual members.
Association of State and Territorial Health Officials (ASTHO)
http://www.astho.org/
The Association of State and Territorial Health Officials (ASTHO) is the national
non-profit organization representing the state and territorial public health agencies of
the United States, the U.S. Territories, and the District of Columbia. ASTHO's members,
the chief health officials of these jurisdictions
Association of Teachers of Preventive Medicine (ATPM)
http://www.atpm.org/
The Association of Teachers of Preventive Medicine (ATPM) is the national professional
association dedicated to advancing individual and community health promotion and disease
prevention in the education of physicians and other health professionals. ATPM individual
members are teachers, researchers, practitioners, administrators, residents and students.
ATPM institutional members include preventive medicine and related departments in medical
schools, schools and graduate programs in public health and preventive medicine, other
health professions schools and various health agencies.
National Academies of Practice (NAP)
http://views.vcu.edu/nap/
Link to organization devoted to promoting quality health care for all through
interdisciplinary practice, education and research.
The National Association of Community Health Centers (NACHC)
http://www.nachc.com/
The National Association of Community Health Centers is the national trade association
serving and representing the interests of America's community health centers. Community,
Migrant and Homeless Health Centers serve 11 million people at 3000 health center delivery
sites – spanning urban and rural communities in all 50 states, including the District
of Columbia, Puerto Rico, Guam, and the US Virgin Islands.
National Association of County and City Health Officials
http://www.naccho.org/
NACCHO is a nonprofit membership organization serving all of the nearly 3,000 local
health departments nationwide—in cities, counties, townships, and districts. NACCHO
provides education, information, research, and technical assistance to local health
departments and facilitates partnerships among local, state, and federal agencies in order
to promote and strengthen public health.
National Association of Social Workers (NASW)
http://www.naswdc.org/
The National Association of Social Workers (NASW) is the largest membership
organization of professional social workers in the world, with more than 150,000 members.
National Organization of Nurse Practitioner Faculties (NONPF)
http://www.nonpf.com/
National Organization of Nurse Practitioner Faculties (NONPF) provides leadership in
promoting quality nurse practitioner education at the national and international levels.
NONPF represents over 1100 faculty members from across the country.
National Rural Health Association (NRHA)
http://www.nrharural.org/
The National Rural Health Association is a nonprofit association composed of individual
and organizational members who share a common interest in rural health. The association is
headquartered in Kansas City, Missouri, with a Government Affairs Office in Washington,
D.C.
Society of Teachers of Family Medicine (STFM)
http://www.stfm.org/index_ns.html
The Society of Teachers of Family Medicine was founded in 1967 to respond to the needs
of family medicine educators. Membership includes more than 5,000 teachers of family
medicine.
State & Local Links to Primary Care
Providers
A full listing of sites for each state and locality is beyond the
scope of this toolkit. Many of the national listings have linkages to state associations
or local resources. In addition, a search or inquiry through state government and the
state department of health can serve as sources of information regarding method to reach
primary care providers in a specific state or locality
National resources linking to state and regional organizations:
PCAWEb
http://www.pcaweb.org/
A resource to locate state and regional associations representing community and migrant
health centers
State Public Health Associations
http://www.apha.org/state_local/afflinks.htm
APHA's linkages to state public health associations
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